2014 seems to have been a year of upheaval and uprising, of extreme highs and lows, tragedies and atrocities, of revelations great and terrible. Natural and/or man-made disasters dominated local and global news. Planes fell from the skies, flood-waters rose, diseases flourished, people around the world were killed for being who they were where they were (students; black men; female; indigenous women; transexual; disabled …). Governments and government agencies were revealed as complicit in crimes against their own people, as well as others. Those in power were revealed as abusing that power. It sometimes seems that each year brings an escalation of violence and intolerance. Does it end? Is this sense of escalation an illusion? Is this how it has always been and always will be? Does it come to a head and subside? Do we learn to live better, with the world, and each other?
My own year has been a peculiar mix of surprising successes, big changes and ongoing difficulties.
Looking at it in terms of what might be termed ‘worldly success’, this has been the best year I’ve ever had.
I started my first full-time academic job in September.
I was granted funding for a Knowledge Exchange project.
I had a great time judging the first Wordpool Poetry Competition, and was delighted to see the winning poem turned into an animation in the Blackpool illuminations.
I won the Wigtown Poetry Prize (with ‘A Short History of the Moon’), the Andrew Waterhouse Prize for Poetry in the Northern Writers’ Awards, third prize in the Poets and Players Competition (for ‘Causeway’), third prize in the Battered Moons Competition (for ‘Heron/Snow’), and was commended in the Hippocrates Prize (for ‘The Test’).
My pamphlet was shortlisted for the Lakeland Book of the Year.
At times this has seemed implausible to me. When I had to turn down appearing at the Battered Moons Awards event at the Swindon Poetry Festival, because it was on the same day as the Wigtown Festival Awards Event, which I had already agreed to be at, I really started to question how this had all arrived at once. I’ve been struggling so much for so long, in so many areas of my life, I didn’t really know how to stop struggling and bask in these moments.
Behind each of these public successes are the picked-over bones of countless private failures. This should go without saying, but it seems too easy to forget how much we don’t see of each others’ lives in this age of social media. There were dozens of jobs I didn’t get; schemes I was rejected for; poems nobody seems to have wanted. I’ve been thinking a lot about this this year, and what it means to really succeed on one’s own terms. Sometimes rejections arrive at the same time as acceptances, and you don’t know how to feel. Sometimes all the seeming successes in the world don’t appear to move you forward, and you can’t work out what is blocking your progression or how you could do anything differently. Sometimes it seems that just being you is what is blocking your progression. Sometimes you may convince yourself that there is One Thing that will change your stars. Eileen Pun and I call this the Monkey Island Hypothesis – that you can do all that is necessary in any order, but if you miss one vital component you will never get to the next level. It’s hard to escape that feeling that you’re falling behind, or under.
As I’ve written before, whenever I feel like that, I remind myself that the work itself is the most important thing. It doesn’t matter if – like some of the poems that have done well for me this year – no one else appreciates that work for years. There’s a kind of pact you make with the work you do.
The last few years have been very hard for me, in various ways. I’ve had very little income, and what I have had has been very insecure. I have suffered a lot with poor health. I’ve been in constant pain. I’ve been perpetually exhausted, in a way which is hard to explain to a healthy person.
In April I finally discovered that the devastating abdominal pain I’d been living with since November 2012 was a mixture of inflammation of my rib cage, and a broken rib. Through my own persistence, and the persistence and support of my GP and local physiotherapist, I was diagnosed, in October, with Ehlers Danlos Sydrome (EDS). I was also diagnosed with Postural Tachycardia Syndrome (PoTS), which is secondary to the Ehlers Danlos Syndrome, and elements of Marfanoid body habitus. Life in my body, my peculiar body, is beginning to make sense in a way it never has before.
I had to travel down to London and pay to see an expert to get this diagnosis (which effects not only me, but my whole family, as EDS is hereditary). I’m now waiting to go to various clinics which should help me manage some of the symptoms. The diagnosis is both a tremendous relief (to know what it is, and what it is not; to know better how to help and what harms) and a peculiar burden (it is me, or I am it). I am still adjusting to knowing that I have to accept this difference, and its permanence, and all the consequences of that. ‘Normal’ is a lost concept. I will probably always be in some degree of pain. I will injure myself doing ‘ordinary’ things. I will always get more tired than an ‘ordinary’ person does from the same activities. I might never be able to stand still for more than a few moments without getting dizzy and numb and sick, as all the blood in my body sinks away from my head and my brain, and can’t pump itself back up through my too-elastic vessels. My main task for 2015 will be to learn to live with this, in and with my body, now we can see each other for what we are.
I am already learning not to feel guilty about prioritising the things I need to do to do the things I’ve agreed to do (sleep as much as possible; swim as often as possible; don’t be afraid of the judgement of others at the times these are all you can do). Some of you may be familiar with ‘Spoon Theory’. Most days for me at the moment, there is no spoon. I am concentrating on bringing some into being.
So 2014 for me has been a year in which things have come to pass I hardly thought possible. People I’ve never met have read and enjoyed my poetry. People I greatly admire have read and rated my poetry. I have a steady income going forward for a reasonably steady period. Moreover, I have been given the key to unlocking central mysteries of my own life, and those of my family.
There’s a lot of things I feel I’ve been failing at though. I don’t see my friends enough. I don’t even contact my friends enough. I’m behind with all kinds of writing and behind with all kinds of reading. I don’t get to as many events as I’d like to, and I sleep through a lot of life. Most of the time, I’m barely keeping nose above surface.
I’m going into 2015 with some fear and trepidation (and a persistent chest infection), but also more genuine hope than I’ve been able to admit to for a long time. I’ll do what I can on my part – concentrate on what I believe matters most – and hope – keep hoping – that this concentration matters. I hope for the same for all of you. For your wishes and work to matter. For your wishes to work.
I wrote this poem, ‘Forecast’, on New Year’s Day 2013. In February last year it was engraved on a window of the Globe Inn in Dumfries, another fabulous event in my poetry year, that I have previously written about here. I knew when I wrote it something was shifting, but it took so long, so long to manifest as material change. This New Year’s Day, it hasn’t stopped raining, and all bodies in the house slept peacefully into the dark afternoon. Despite that, I think the forecast works as well today.
Forecast
Last night the barometer predicted CHANGE –
the stormy tail of the year passing over.
Midnight threw up stars and a 2/3
moon, scattered as hailstones after.
New year’s day sailed in as a fringe
of spring on a sculling cloud, word
from an unseen sun, blue displacing
blank, as from a vacuum chamber.
One swift shower. One magpie etching
spirals in the lightening air. Now
its partner, binary tail declaring
the arrow’s twitch to Fair.
The Old Year is dead. Long live the New Year.
This has moved me more than any post I’ve read this year gone. What I recognise is the strange paradoxical relief and release of knowing what it is that’s gone wrong with you. It is what it is. For that to work, we have to know what ‘it’ is. So, good luck and god bless.
Thanks John, that means a lot to me. It’s very strange adjusting after a life-time of knowing things weren’t right but not knowing what, how and why. I imagine it will take some months at the least before I begin to understand what having this knowledge really means to me going forward. I do hope talking about it can help other people in similar situations. Best wishes to you for the year ahead too.
I can also relate to knowing something is wrong with you but not sure what. I was diagnosed with Asperger’s Syndrome in 2008 at the age of 41 after many years of not understanding why I didn’t understand people and knowing something was missing but not sure what. In some ways it is a relief and liberating, other ways it highlights the negative responses some people have towards others. It’s only been through my recent writing that I have been able to understand myself on a deeper level and accept myself for who I am. It’s not an easy journey and can take many years but it is worthwhile so stick in there Polly and you will get there.
Hi Polly. I read your blog with interest through a link from Kim Moore. A friend of mine, Alison Schofield, also has EDS and she writes a blog which you may be interested in reading. The address is: http://alison-the-bendy-zebra.blog.co.uk/. Take care.
Thanks Andy, I’ll definitely check it out. EDS is such an under-researched and misunderstood condition I’m reading as much as possible from any sources. Very glad to be able to read about other people’s experiences of it.